I am going to try to keep this brief as I am heading back up to the hospital, but wanted to give everyone an update.
First of all, we have been so overwhelmed by the amount of support and prayers we have received and we appreciate them so much!! Thank you, THANK YOU!!!
Tuesday was a very hard day for all of us as we realized that the antibiotics being given to Levi were not working. We were not seeing signs of improvement and he was getting worse. The doctors decided that we were in fact not dealing with an infection and needed to explore other areas.
Along with other tests, an MRI was ordered and a neurologist was brought in. There were 3 small spots found on his brain that we believe were caused by a lack of oxygen at some point during pregnancy, labor, or delivery. This has caused many symptoms in Levi including low muscle tone (especially in the neck and shoulder area), inability to control body temp, low oxygen levels, lethargy, and some seizure activity, plus more. All of these things look very scary as I type them, but the GREAT news is that he is improving by leaps and bounds.
He is actually now maintaining his body temp well, is much more alert and responsive, he is eating well (still needs some improvement), and is slowly being weaned off of the oxygen. He is taking anti-seizure medication and will evaluated again in 4 weeks to see if he still needs that. We are very hopeful that we will bringing him home some time next week.
Long term, we will be monitoring Levi closely for developmental delays and such. But it has been stressed to us over and over that Levi has a very mild case of brain injury and that babies are especially resilient to this. Everyone is extremely hopeful that there will be minimal to no long term effects at all.
I have to say, that we have have felt the presence of God moving especially through the body of Christ during this trial. So many are praying, visiting, watching our children, sending meals, cleaning our home, mowing our lawn... All of our needs are being met. Please continue to pray as we need this most.
Will update when I can.
"And my God will meet all your needs according to his glorious riches in Christ Jesus." -Philippians 4:19
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